Family Adventures

This is our family blog to share with all of our friends and family who really want to still keep in touch even though I (and then we) haven't lived in good Ole St. Louie for 10 years. We miss you all!

Wednesday, May 28, 2008

Great News

We got the test results back for Jayden and he does not have cystic fibrosis. That means that although he has lots of other breathing problems, the worst has been eliminated. Some of the other problems he may grow out of as he gets older and the asthma may even get to be less of a problem as well. Thank you all for all your prayers and support over the last 5 months - we wouldn't have been able to do it without those. And praise God he is negative. You don't realize how much we take good health for granted until it you or someone you love's health is threatened.

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Friday, April 11, 2008

Some Good News

I just spoke with the doctor and the lab found two bacteria in Jayden's lungs is two of the most common bacteria around. That is great news because if they found weird ones, we would be very worried. They are going to start him on a course of antibiotics along with his 5 other medicines and hopefully the combination will clear up his infections and keep him healthy.

We will repeat the sweat test in a month or so, but hopefully he's on the side of kids who just have really bad asthma and acid reflux and just was having trouble fighting off everything at once.

Thanks again for your prayers. Please keep praying we can make it safely to summer.

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Friday, April 04, 2008

We're Back ... In The Hospital

So Jayden got admitted into St. Christopher's this morning. He was having trouble breathing, not getting mucus up, an increased heart rate and respiratory rate, etc. etc.

He is going to be here until at least Tuesday morning so they can stabilize him and then run the tests they need to run. He was temporarily taken off feedings, but one of the medicines they gave him here is helping a lot, so he got to start nursing again this afternoon.

At least we can get all these "appointments" out of here quickly:). Hopefully this will be the last time for a long time.

As always, prayers are appreciated.

We're at a new hospital and Internet access is limited so cell is better to reach me on.

Love,
ria

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Friday, March 21, 2008

Jayden's Heading Home

The doctors just cleared Jayden for going home from the hospital. We still don't know about our trip, but at least he is going home for Easter:). Thanks for all the prayers and love. We will keep everyone updated.

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Thursday, March 20, 2008

Another Night....

Well, he had to go back on oxygen for awhile and so we're staying the night. He's back off it again, so hopefully he has a good night and we can head home tomorrow. Only time will tell. Not much else news. His CF test is scheduled for a couple weeks from now, but they will have the results 24 hours after it is performed, which is good. Until then, we hope to get a bit more rest.

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No More Oxygen!

So Jayden decided he didn't want his oxygen anymore and took it out early this morning. The nurses laughed and let him go, and this time his oxygen levels didn't go down too much, which is a great sign. The doctor said if he can keep this up throughout the day, we may get to go home.

His doctor said he definitely is asthmatic (really, you think;)?? They are trying to get him in for the sweat test this morning to test for cystic fibrosis, but if he can't get in this morning and he gets released, we will come back for that as an outpatient.

The prayers are great and he has been getting a lot of rest, especially since Ethan can't climb into his crib or poke him every minute of the day.

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Wednesday, March 19, 2008

Some News

So we have some good"ish" news. Jayden did test positive for a virus and hopefully that explains everything. We are hoping that means he's just been a somewhat unlucky little boy who hasn't had enough time to really build up his immune system and not signaling some more serious possibilites.

They are still looking at a few other things and haven't tested him for cystic fibrosis yet, which they will be doing in the next day or so. We are praying that comes back negative, but it is a possibility and we need to check into it. So at least we will know after he is tested.

Keep the prayers coming. They said if they can get him off of oxygen, he may be able to leave tomorrow, so we'll see.

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Update on Jayden

Well, he's doing ok, but they had to put him on oxygen overnight to stabilize him more. His oxygen levels were getting too low as he slept. We'll see how he does with/without it today. Today they are looking at many underlying causes for his never-ending breathing issues and we'll see what all the "experts" can come up with. In the meantime, it's just a lot fo waiting. Thanks for the prayers and keep them coming.

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Back For Another Round

I will update the blog when we get info.... As always, prayers are greatly appreciated.

Jayden is in the hospital again. Pleas say prayers they can help him and get to the bottom of his breathing problems. He is having chest xrays and a lot of PT, deep suctioning, etc. and will be staying for at least tonight. In his current state, he is not able to fly and will not be able to travel. They said they think with some effective treatments, that should change, but we just have to see.

We will have more updates later...hopefully this is a short stay:)

Love,
ria

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