Quick Update - Good News

So we got some pieces of good news about Jayden today - his WBC rose up to 1800. That means he although he is still low, he is nowhere where he was before and a lot further away from that critical level. So we still have to figure out why he is off, but hopefully we can do that in a few visits.

It looks like when he gets sick, when his WBC should get higher, instead it goes very low and when he is ok, it is still low, which makes sense that while he catches nearly everything like most little babies, he can't fight it off on his own. Now we need to try to figure out why.

His genetic testing for CF came back negative! We are so happy about this. They tested for the 70 most common mutations associated with CF and they were all negative which is fabulous news.

Anyway - some great news for my birthday:)

Testing Complete

So I took Jayden for his appointment and sweat test today. He gained a pound in a month, which is right on track and we were able to get enough sweat to test him. We should know the results by tomorrow so we'll keep you posted. Thanks for the prayers!

Love,
ria

Plan Of Action

So I spoke with his pulmonologist this afternoon. She said a lot of the irritation may be aggravated by the acid reflux, so we are getting a new acid reflux medicine. They are attempting to grow cultures in the lab to figure out what was in his lungs and we should know that by Friday or Monday. If that shows bacteria, they will give him the appropriate antibiotic.

They are going to wait a few weeks for another sweat test in hopes he gets bigger and healthier.

Finally, if he has a good night, we can go home tomorrow! Yeah:). Hopefully we can keep him out of the hospital for awhile:).